Last week, the National Organization for Rare Disorders (NORD) held its annual summit in Washington DC. This meeting brings together stakeholders from across the rare disease space in order to foster continued learning, communication, and [...]
As part of the 21st Century Cures Act, the FDA has been charged with creating one or more guidance documents regarding the collection of patient experience data. Patient experience data is information collected on the [...]
Although the UK is home to some of the world’s leading scientific and medical researchers, the country has historically struggled to make effective use of large-scale patient health data. In an effort to combat this, [...]