More than 100 million patients with Rare Diseases are known in India. The Indian Organization for Rare Diseases (I-ORD) was conceived in 2005 and is incorporated as a not-for-profit organization in India and USA. It is the umbrella organization and represents interests of all rare diseases, individual patients, patient support groups, health policy advocates and health care provides for rare diseases.
The objectives of I-ORD include:
• Raising the Awareness of Rare Diseases
• Advocating Public Policy
• Encouraging Pharma/biotech to Develop Orphan Drugs