Congenital Hyperinsulinism (HI) is a rare, life-threatening disorder that causes dangerously low blood sugar levels (hypoglycemia), which can lead to seizures, brain damage, and even death. The advocacy group, Congenital Hyperinsulinism International (CHI), was founded in 2005 by a group of parents of children suffering from HI. Over the past sixteen years, they have worked with leading physicians, researchers, and patient advocates to prevent brain damage and death, search for better treatments and a cure, and improve the quality of life for all HI patients. You can learn more by visiting their website.
As part of our efforts to aid patient advocacy groups around the world, WEP Clinical partnered with CHI in 2016 to help support their mission. We have had the great pleasure of working with CHI representatives and the physicians they serve, and we are extremely proud of the combined efforts made to help HI patients across the globe.
To find out more about CHI and the ways in which our two organizations have been working together, check out the video interview below in which WEP’s Patient Advocacy Support Specialist chats with CHI’s Executive Director and Research and Policy Director.
To find out more about WEP’s advocacy support offering and access a full list of the groups we are currently partnered with, visit our advocacy page.