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The Cambria Lord Foundation 2018-08-28T09:33:10+00:00

The Cambria Lord Foundation

The Cambria Lord Foundation is a non-profit organization dedicated to providing support and resources to families affected by rare disease.

Over 30 million Americans live with a rare disease and 15 million of those are children. A rare disease has become a hot topic in the US on the political front as lawmakers in the House have launched a Rare Disease Caucus and the Senate is following suit.

At the CLF, current focus in on promoting initiatives and policies that will make a difference for the rare community. Current efforts include establishing a Kansas State Rare Disease Advisory Council and creating a National Emergency Treatment Database for Rare Disease Patients.

For more information, visit The Cambria Lord Foundation website.


Email: wear4rare365@cambrialordfoundation.org