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The Network of Tyrosinemia Advocactes (NOTA) 2018-04-12T10:12:16+00:00

The Network of Tyrosinemia Advocactes (NOTA)

NOTA was created to bring together the Tyro community. What started as a simple Facebook group has now turned into a worldwide community of families and friends who are or know someone who is affected by Tyrosinemia. Our goals are simple and aim to help spread information about Tyrosinemia and build a stronger.

NOTA’s mission is to ensure that no individual around the globe goes untreated; that every parent has the support they need at critical times; and that newborn screening is efficient and never misses a child’s diagnosis.

For more information, visit the NOTA website.


Email: jon@fieroservice.com