Rare Disease Day 2020
Rare Disease Day 2020 will be held this week, on Saturday the 29th of February. Occurring every year on the last day of February, this day is celebrated to help raise awareness of rare diseases [...]
Europe’s Beating Cancer Plan
The European Commission, which is the executive branch of the European Union responsible for proposing legislation, implementing decisions, upholding the EU treaties and managing the day-to-day business of the EU, has been working with EU [...]
UK Minister for Innovation introduces the Medicines and Medical Device 2019-20 bill
As the UK officially left the EU at the end of last month, Brexit is now well underway. The country is currently in the midst of an 11-month transition period, during which the government will [...]
New Chan Zuckerberg Initiative (CZI) program provides funding for rare disease advocacy groups
In recent years, there has been increased recognition of the important role that patients can play in enhancing drug development and approval efforts. Because patients are experts in their disease area, they can provide useful [...]
New UK Health Data Research Hubs
Although the UK is home to some of the world’s leading scientific and medical researchers, the country has historically struggled to make effective use of large-scale patient health data. In an effort to combat this, [...]
New infographics highlight success of Orphan Drug Act
The Orphan Drug Act (ODA), which was passed in 1983 to incentivize drug development for rare diseases, has come under scrutiny in recent years. There are some within industry who claim that the program has been [...]
MHRA publishes proposals for dealing with a no-deal Brexit
In the last remaining months leading up to the UK’s exit from the EU, the Medicines and Healthcare products Regulatory Agency (MHRA) is taking action to prepare for a potential ‘no-deal’ Brexit. The MHRA strongly [...]
Pharma companies encouraged to prepare for ‘no-deal’ Brexit
With the Brexit leave date fast approaching, efforts are continuously being made to ensure that patient health and wellbeing remain protected, following the UK’s exit from the EU. Last month, the Secretary of State for [...]
Healthcare organizations come together to create new generic drug company
Medicine shortages and rising drug prices continue to plague the US healthcare system, despite efforts being made by government on the national and local level to combat the issue. As it stands, hospitals around the [...]
Senate goes against White House by proposing $2 billion increase in funding for NIH
In a move that defies President Trump’s proposed budget for fiscal 2019, the Senate is gearing up to approve a $2 billion increase in funding for the National Institutes of Health (NIH). This increase has [...]