About the Advocacy Group
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis (CF) and to provide all people suffering from CF the opportunity to lead long, fulfilling lives. The foundation aims to achieve this by funding research and drug development, partnering with the CF community and advancing high-quality specialized care.
Through our work with the Cystic Fibrosis Foundation (CFF), we were contacted by the grandfather of a young CF patient in Barbados. There are no approved treatments available to patients in Barbados, so he had been travelling with his family to Miami, US, every six months to receive an FDA-approved drug. However, this was not a feasible long-term solution, so the grandfather and the CFF reached out to WEP Clinical in the hopes that we could help them find a way of getting the drug delivered to them in Barbados.