Rare Disease Day 2020
Rare Disease Day 2020 will be held this week, on Saturday the 29th of February. Occurring every year on the last day of February, this day is celebrated to help raise awareness of rare diseases [...]
Europe’s Beating Cancer Plan
The European Commission, which is the executive branch of the European Union responsible for proposing legislation, implementing decisions, upholding the EU treaties and managing the day-to-day business of the EU, has been working with EU [...]
UK Minister for Innovation introduces the Medicines and Medical Device 2019-20 bill
As the UK officially left the EU at the end of last month, Brexit is now well underway. The country is currently in the midst of an 11-month transition period, during which the government will [...]
New Chan Zuckerberg Initiative (CZI) program provides funding for rare disease advocacy groups
In recent years, there has been increased recognition of the important role that patients can play in enhancing drug development and approval efforts. Because patients are experts in their disease area, they can provide useful [...]